The Foundation has provided funding to create a fun and exciting programme of activities and outings for the life-limited children and young people who come to the children’s hospices for respite care. It is very important to the hospice that the children are not just passive receivers of care whilst they are there. The ethos is always to enable the children to make the most of the short time that they have, and to do things that they are not able to do at home. Many of the children are very poorly and very disabled, which means that parents are often not able to do activities with them as they are worried about medication, or they have transport or other practical problems. The Foundation has also helped to fund a comprehensive package of care and support for one family for a whole year. This includes respite care for the child, practical and emotional support for parents and siblings, counseling, and support at home through the community care team.
